Archive for March 6th, 2010

Leveraging EMR Data to Develop Disease-Based Registries

March 6, 2010

This is my other presentation at HIMSS 2010. One of the real values of EMRs is the secondary use of the data for research. While respecting patient privacy, this kind of research can be rapidly developed from EMR data. We recommend the following steps:

  1. define the cohort of patients you want to study/monitor
  2. define the data elements you want included
  3. review and verify data elements with subject matter experts
  4. set up a regular interval to extract the data
  5. generate some test queries to verify the process
  6. monitor to use of the data (ongoing governance)

Our initial experience with a Chronic Kidney Disease registry has been a success. We recommend that research issues be considered in any purchase and implementation of an EMR.

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