eHealth » Medicine 2.0

Medical Informatics 2.0

John Sharp — Sun, 09 Sep 2012 03:25:14 +0000

Informatics 2.0 is the title of an editorial in the Journal of the American Medical Informatics Association (JAMIA). Subtitled, “implications of social media, mobile health, and patient-reported outcomes for healthcare and individual privacy”, this article reviews some of the recent work published in the journal including social media and mHealth. But what really is Informatics 2.0. We already have multiple definitions of medicine 2.0 and health 2.0. Is this an indication that Medical Informatics is broadening their horizons? Precise definitions are hard to find, but one should inlcude:

consumer health informatics as evidenced by social media in health care
e-Patient movement and participatory health care
online interventions for healthcare
Mobile devices and mobile apps for healthcare
Use of social media in research recruitment
Social networks and social media for medical informatics collaboration
The semantic web in healthcare
Patient Center Medical Outcomes enabled by online tools
Reference wikis in medical informatics

As you can see, the scope of Medical Informatics is broad as the use of Web 2.0 technologies spreads to many opportunities and transforms medical informatics into a more dynamic endeavor.

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Conference Season Approaching – Prepare for Landing

John Sharp — Wed, 08 Aug 2012 02:43:20 +0000

While it may not be as exciting as landing on Mars, there are several conferences this Fall worth noting:

Medicine 2.0 Boston with over 300 presenters and a wide range of topics from mobile and social media to education and personal monitoring devices from every continent. I attended last year at Stanford but will not this year. Will miss the colleagues I have met over the years. Good to see ePatient Dave doing a followup on “Give Me My Damn Data”
Health 2.0 San Francisco – the ultimate showcase for health startups will including preconference workshops on Patients 2.0,Health Law 2.0, Employers 2.0 and Doctorrs 2.0. Would like to see Clinical Trials 2.0 some year as well.
StrataRx conference by O’Reilly on health data. Looks like an excellent line up of speakers and topics although light on providers and EMR vendors.
AMIA 2012 Symposium in Chicago - Mayor Rahm Emanuel Declares October 30 to November 7, 2012 Informatics Week in Chicago. I will be attending and speaking at a preconfence workshop on Clinical Research Informatics Infrastructure.

I am sure there are many more, this is just a highlight of the Fall schedule.

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Future Med This Week

John Sharp — Wed, 08 Feb 2012 03:23:52 +0000

Although I am not there, I feel the spirit of FutureMed. Sold out again, this program of Singularity University covers topics including:

Exponential and Emerging Technologies
Regenerative Medicine
Information and Data Driven
Future of Medical Practice
Personalized Medicine
Future of Intervention and Robotics
Neuromedicine
Innovation and Entrepreneurship
Global Health
Government and regulatory
Longevity

This line up is complemented by an large, expert faculty including some friends: Lucien Engelen and Roni Zeiger.

Daniel Kraft organizes this unique event every year. Listen to his interview from last year.

Daniel Kraft from The Doctor’s Channel on Vimeo.

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Who Owns Your Data?

John Sharp — Tue, 24 Jan 2012 03:39:19 +0000

In a radio interview from Inside the Media, Hugo Campos, an e-Patient with an implanted defibrillator (ICD), talked about his desire to have the data from his device. His logical argument is that the device is now part of his body and so he should have the right to the data from the device. So far he has been unsuccessful in getting his provider or the manufacturer to assist him with this. While rights to one’s own health data is becoming a reality through the Affordable Care Act and Meaningful Use and through initiatives like the Blue Button, device data is new territory. One could argue that the data is too complex for the lay person to analyze but that is the same argument which was made not so long ago about medical records in general. With the growth of apps and health information on the web, complex medical data is becoming more accessible.

This new territory needs more discussion. See the comments on the podcast page. Also, you can follow Hugo on the ICD Users blog.

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Year in Review – Travel

John Sharp — Tue, 27 Dec 2011 04:31:05 +0000

It was a big year for traveling to conferences:

February – HIMSS Annual Conference in Orlando – spoke at the Social Media center twice and presented on a panel on social media
March – AMIA Clinical Research Informatics Summit in San Francisco. Two podium presentations (CKD Registry and REDCap business model) and two posters
April – attended TEDx Maastricht in the Netherlands and a side trip to UMC Radboud in Nimegen.
April – ACRT meeting (Association for Clinical Research Training) in Washington, DC – panel presentation on REDCap.
May – Patient Experience Summit at Cleveland Clinic with Enoch Choi presenting
June – consulting at a hospital in Michigan on data warehousing
September – Medicine 2.0 Congress in Palo Alto, CA. Poster presentation
October – American Association of Medical Colleges meeting on Big Data in Washington, DC
October – Clinical and Translational Science Awards Informatics meeting at the National Institutes of Health. Bethesda, MD – poster presentation
October – Panel at Case Medical School, Cleveland on Social Media in Clinical Trials
November – Senior Workers Conference in Minneapolis, MN – presentation on Social Media and Electronic Medical Records
December – Center for Health Services Research and Policy at MetroHealth Medical Center, Cleveland, on Disease Registries using EMR Data

Most of these are posted on SlideShare. Looking forward to many opportunities in 2012 as well.

Next post – Accomplishments in 2011

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e-Patients, Quantified Self and Self-Efficacy; Self-Monitoring Through Technology

John Sharp — Tue, 08 Nov 2011 14:13:43 +0000

New featured blog post of mine on HealthWorksCollective. Would be interested in comments especially from the e-Patient and Quantified Health communities.

_______________________________________________________________________________

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Social Media Can Change HealthCare – Medicine 2.0 Conference Takeaway

John Sharp — Mon, 26 Sep 2011 02:04:06 +0000

I have a new blog post on HealthWorks Collective which is a report on some major themes I observed at the Medicine 2.0 Congress at Stanford this month.

behavior change is possible through social medial and mobile apps
Social media can change how healthcare is delivered in a patient-centric, participatory medicine approach.

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The Healthcare Social Media Landscape

John Sharp — Fri, 03 Jun 2011 02:33:37 +0000

Here is a slide show I created reflecting on the different communities developing in this space. Although each emerged on its own, there is certainly collaborative projects and people across these communities and a sense of mutual support. I myself attended the first Health 2.0 conference, then Medicine 2.0 and also part of the e-Patient community. More conferences occur each year both in the US and Europe; two recent examples are TEDx Maastricht which had a health focus and Doctors 2.0 taking place later this month in Paris. Also, the Quantified Self movement is coming to health care as well.

I’d be interested in other’s opinions on this.

Health care social media communities

View more presentations from John Sharp

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TEDx Maastricht – The Future of Health

John Sharp — Fri, 01 Apr 2011 19:17:06 +0000

In anticipation of the International event on April 4, I wanted to share some links. Although many conferences which claim to be futurist meccas for healthcare, this one is bringing together a group of people including a very strong patient perspective which all are thinking innovation. Also, it is completely full and is being simulcasted to several countries.

Website, speakers
Some of the attendees via a tool which exploits LinkedIn
mashup on VPRO
Simulcast schedule – I am being interviewed at 11:15 local time

Follow tweets at #tedxmaastricht

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Health 2.0 – a Double Dutch Treat

John Sharp — Thu, 01 Jul 2010 02:33:21 +0000

Lucien Engelen of Radboud University, Nijmegen, NL, and his team (Tom Van De Belt is the first author) have struck two goals in the world cup of Health 2.0. In the Journal of Medical Internet Research, they have published “Definition of Health 2.0 and Medicine 2.0: A Systematic Review.” This broad review of published literature and blogs included a post by me and many others. They note no consensus on these definitions but some recurring themes:

Web 2.0/technology
patients
professionals
social networking
health information/content
collaboration
health care change.

The second publication is “A Little Booklet About Health 2.0“, originally available in Dutch, now in English for the Kindle, soon to have an English paper edition. This modest title provides a good introduction to Health 2.0 for beginners and those who may have concerns about venturing into this growing field. It is a quick read and dives right into the key topics, using the example of MyCareNet, an innovative interactive platform for IVF patients and providers and leads us to the concept of participatory healthcare and bringing in the patient’s perspective on service design.

These two publications demonstrate some of the growing Dutch leadership in Health 2.0 which will culminate in the Medicine 2.0 conference in Maastricht this November and the TEDxMaastricht program.

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