Posts Tagged ‘epatients’
Lethal Lag Time: Concerns, Possible Solutions
November 24, 2009
In a follow up from yesterday’s post, I came across an article in the Journal of the National Cancer Institute on a drug funding issue force one of the major cooperative oncology groups to modify how they approach clinical trials. The article, titled,
“Costly Cancer Drugs Trigger Proposals To Modify Clinical Trial Design” notes a new drug costing up to $9000 per month per patient. In doing the economic analysis using formulas like Quality Adjust Life Years (QALYs), the real value of these treatments is being questioned.
On the brighter side, two potential solutions to long lag times for research are a search tool and a predictive modeling tool.
- explorys is a new spin off from the Cleveland Clinic which “enables users to collaborate, search, and tag meaningful correlations from treatments and outcomes within patient populations while maintaining security and privacy.” Hoping to get a demo soon.
- Archimedes Model which is reviewed recently in Business Week
and in Wired Magazine this month. which is a predictive modeling tool which is a full-scale simulation model of human physiology, diseases, behaviors, interventions, and healthcare systems.
Journal of Participatory Medicine and e-Patients
September 25, 2009
If you have not read the e-Patient White Paper, you do not understand the future of medicine. Being an e-Patient is beyond being empowered. The subtitle, How they can help us heal healthcare, describes the potential for a revolution of change.
Now comes the Journal of Participatory Medicine to fill a gap in journals which acknowledge the active role of the patient in current medical practice. While other journals, such as, the Journal of Medical Internet Research, publish articles on patient participation in health care and social media, but a single journal devoted to this topic will be a welcome addition and make the topic more officially sanctioned as a valid field of medical study. The editorial board is very impression and lends an important boost to this new journal.
Technorati: Health 2.0
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