American Health Information Community Consumer Empowerment Workgroup

September 18, 2006

This workgroup met in D.C. today and I was able to listen to some of the testimony and discussion online. The focus of the agenda was Personal Health Records. Particularly significant and referred to repeatedly was Paul Tang’s testimony based on Palo Alto Medical Foundation’s  PAMF Online (the powerpoint in PDF format available at the link above). He noted patient information needs including custom-tailored information and physician endorsement of health information. Regarding PHRs, he indicate that the consumer wants information related to visits, secure communication with their doctors, tools for managing chronic diseases but also had fears related to privacy and security especially that information is not shared with their employer.  Dr. Tang also detailed a sustaining value proposition including integrated delivery system, interoperable EHR/PHR, trust and physician adoption.

The session materials also include a Draft Visioning Matrix which is the next task of the Workgroup.

This Workgroup is worth keeping an eye on. You can sign up for email updates here.

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