Posts Tagged ‘open source’

Innovative Informatics for Clinical and Translational Researchers

October 18, 2010

On Friday, I attended this symposium sponsored by the National Center for Research Resources of the National Institutes of Health where the meeting was held. The symposium presented some of the latest software development for supporting research in academic medical centers. Topic areas included:

  • Data Repositories for Research
  • Participant Recruitment Tools and Strategies
  • Clinical Information Systems and Research Study Management Systems
  • Research Portal Innovations

Some highlights include

  • i2b2 as a data repository (Informatics for Integrating Biology and the Bedside)
  • REDCap for research study management (Research Electronic Data Capture) – used in over 160 centers
  • Vivo – enabling scientific collaboration – an impressive development using semantic technology.

The scope of these technologies are impressive and on the cusp of enabling great strides in medical research. Through the NIH and CTSA grant process, this parallel development to the Health 2.0 startup process is ongoing. When will these academic tools converge with the Health 2.0 and social media explosion to transform medicine together?

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Google Public Data Explorer for Healthcare

March 16, 2010

Google recently released its public data explorer which combines the Google visualization tools with public datasets include population data and health data. For healthcare, the initial launch includes Sexually Transmitted Diseases in the U.S. and Cancer cases in the U.S. The charts allow selection by state and time options. For these two charts, CDC data sources are used.

So could this data explorer be used more broadly with other health data sets. For starters, those at Data.gov (although most of the health data sets are Medicare cost data). But could major disease registries open themselves up to this API so that medical researchers could visualize more data sources and generate more research questions more quickly.  This could be one solution for the for the lethal lag time.  The CDC has additional data sets available. But what about opening closed data sets, such as, those from the Society of Thoracic Surgeons or other disease-specific registries. Then there is the growing volume of patient reported data from sites like PatientsLikeMe and CureTogether.

The limitation of this approach is having researchers capable of interpreting these data visualizations to make meaningful interpretations. The peer review process would prevent publication of misinterpretations of the data. An additional control would be combining the data explorer with social networking tools for users to discuss visualizations and research observations of the data.  Perhaps this could be accomplished through Google Wave.

Comments and data sets welcome.

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The Top 100 Open Source Software Tools for Medical Professionals

April 17, 2008

100 sounds like an exhaustive list but it also demonstrates the extent of tools available to health care. While some of these are definitely healthcare specific, others are general software tools – everything from antivirus to open office. Surprisingly, the category of “storing patient information” includes many open database models which most healthcare providers would not see as secure enough by HIPAA standards. There are patient-specific tools as well. Worth a review and perhaps a selective trial for some of these.

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Open Source for eHealth

April 11, 2008

Open Health Tools is a relatively new site which is sponsoring projects related to health care. There are so far a small number of projects uploaded to their project list. They also have a collaboration area called OpenCollabnet.

A related initiative is Open eHealth described as “Open Source for Electronic Health – Open eHealth Foundation to Provide Solid Basis for Interoperability.” This group appears to be more focused on interoperability including SOA and has some important partners include Sun Microsystems. They note that, “The healthcare oriented components will initially include services for patient consent management, virtual patient records, patient information management and services for a standardized users, roles and relations management.” This is obviously in its early stages which may mean it is advantageous to join.

Open source has strong possibilities in health care if it can gain the trust of major players over proprietary systems. It will be important to see how IBM with its open source emphasis will work in this space.

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