Posts Tagged ‘Health 2.0’
Innovative Informatics for Clinical and Translational Researchers
October 18, 2010
On Friday, I attended this symposium sponsored by the National Center for Research Resources of the National Institutes of Health where the meeting was held. The symposium presented some of the latest software development for supporting research in academic medical centers. Topic areas included:
- Data Repositories for Research
- Participant Recruitment Tools and Strategies
- Clinical Information Systems and Research Study Management Systems
- Research Portal Innovations
Some highlights include
- i2b2 as a data repository (Informatics for Integrating Biology and the Bedside)
- REDCap for research study management (Research Electronic Data Capture) – used in over 160 centers
- Vivo – enabling scientific collaboration – an impressive development using semantic technology.
The scope of these technologies are impressive and on the cusp of enabling great strides in medical research. Through the NIH and CTSA grant process, this parallel development to the Health 2.0 startup process is ongoing. When will these academic tools converge with the Health 2.0 and social media explosion to transform medicine together?
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Social Media in Health Care – Latest Presentation
October 4, 2010
This is more of an introductory presentation I gave at Toledo Hospital for social workers, including information on hospital policies, prescribing social media to patients, and some of the risks of social media. At the end of the presentation, I discussed the dilemma of managing the professional and personal identities. Links to website mentioned are on Delicious.com
Social Media Season
September 28, 2010
It must be Fall because the conference season is ramping up. Two social media conferences going on at the same time:
- ePatient 2010 in Philadelphia with the likes of ePatient Dave and Susannah Fox
- Health Care Social Media Summit in Jacksonville, Fl
Notable is the announcement by Radboud University Nijmegen Medical Centre in the Netherlands and the Mayo Clinic of a Global Social Media Health Network.
All of this reflects the maturity of the healthcare social media, ePatient and Health 2.0 community. A kind of convergence is occurring bringing technology to the focus on the patient with full participation of the epatient. Greater attention by mainstream media and the scientific community is only accelerating the movement – see last week’s Scientific American Pathways article, “The Rise of the Empowered Patient“, which quotes Lucien Engelen of Radboud University among others. Can this convergence be sustained? Will the enthusiasm and energy be focused to create real change in healthcare? This level of optimism can only do good.
Share this:Impact of Accelerating Technologies
September 23, 2010
Singularity University is teaching the importance of accelerating technologies. It is teaching its students “to take advantage of exponential growth trends in order to create global change.” Salim Ismail, CEO of SU points out that many startups turn into billion dollar businesses in ever shortening time frames, sometimes as little as two years. And he says that many of the technologies we are learning today will be outdated by the time they are completed.
How will we manage this accelerated growth in technology? Is there anyway to keep abreast of it? Will only rapid development approaches be successful in the near term? What about legacy systems (like many EMRs) which take years to upgrade? Maybe events like the upcoming Health 2.o Hackathon will be the real future of healthcare technology.
What the Singularity video here:
Share this:Health 2.0 – a Double Dutch Treat
June 30, 2010
Lucien Engelen of Radboud University, Nijmegen, NL, and his team (Tom Van De Belt is the first author) have struck two goals in the world cup of Health 2.0. In the Journal of Medical Internet Research, they have published “Definition of Health 2.0 and Medicine 2.0: A Systematic Review.” This broad review of published literature and blogs included a post by me and many others. They note no consensus on these definitions but some recurring themes:
- Web 2.0/technology
- patients
- professionals
- social networking
- health information/content
- collaboration
- health care change.
The second publication is “A Little Booklet About Health 2.0“, originally available in Dutch, now in English for the Kindle, soon to have an English paper edition. This modest title provides a good introduction to Health 2.0 for beginners and those who may have concerns about venturing into this growing field. It is a quick read and dives right into the key topics, using the example of MyCareNet, an innovative interactive platform for IVF patients and providers and leads us to the concept of participatory healthcare and bringing in the patient’s perspective on service design.
These two publications demonstrate some of the growing Dutch leadership in Health 2.0 which will culminate in the Medicine 2.0 conference in Maastricht this November and the TEDxMaastricht program.
Share this:Partnerships with Online Communities – The Long Tail
June 4, 2010
Chris Anderson in writing Long Tail: Why the Future of Business Is Selling Less of More, popularized this concept particularly in viewing markets in the wired world. How does it apply to health care? Probably in many ways. But specifically it came to mind in thinking about the relationship of provider organizations like hospitals and online communities. While many online communities may attract large numbers, for instance, in diabetes and breast cancer, many more condition specific communities are relatively small even though they may have a national or international scope. Gilles Frydman of ACOR recognized this early by encouraging the proliferation of online communities through his listserv.
Provider organizations are moving into social media but struggling to identify meaningful ways to connect with their patients through Facebook and Twitter. Perhaps the struggle has to do with a broad stroke strategy of trying to appeal to all comers. The real opportunity is in the Long Tail of small online communities who know the best hospitals, information sources, physicians for their disease or condition and talk to each other about it all the time. Certainly PatientsLikeMe.com has found this in the specialize community of ALS and others like it have found the value in the long tail. What about groups like Marfan Syndrome or others that fall under the umbrella of the National Organization of Rare Diseases (NORD). Specialist who treat these diseases in the long tail of healthcare have a unique opportunity to become online partners potentially contributing to blogs, social networks or listservs and inviting patients to post blogs about their experiences on the hospital’s blog or Facebook page. There are many possibilities to explore – meetups, suggestions for improving care – hope to see some take up this challenge.
Share this:Technology and the Future of Chronic Care
May 24, 2010
Accenture has published a report on “Connected How Technology Will Transform the Future of Chronic Care.” From the Accenture Innovation Center for Health, a good source for research white papers. The paper reports that “a broad range of consumer health electronics at home, a two-way, direct-to-consumer infrastructure” and smart devices which set the stage for health care connectivity. Analytics and predictive modeling provide a second layer and visualization, decision support and collaboration provide the third. Connect health examples include the HealthVault and Cleveland Clinic home monitoring pilot and a remote monitoring trial by the VA system.
There is no doubt that the convergence of technologies have the potential for revolutionizing chronic care, however, we must go past the pilot stage and initial startups to broader change. Partnerships between consumer electronics, startups, providers and insurers need to come together with government support. Perhaps after the first wave of meaningful use EHRs, this new level of innovation can flourish.
Share this:A History of Innovation in Medicine
May 17, 2010
Health 2.0 has pushed innovation in health care from its inception. From social networks for patients and providers to vertical search and mobile health tools, innovation continues. The Quantified Self represents the latest level of innovation for healthcare. The letters to the NY Times Sunday Magazine in response to the feature on The Data Driven Live, has this choice quote by Patricia Flatley Brennet of Project HealthDesign “Doctors are experts in clinical care; patients are experts in their daily experiences and how they make them feel. Both need to share more with each other.”
But some healthcare organizations have been innovative from the beginning. See the video on the Cleveland Clinic Model of Medicine and then read their latest Annual Report with President Obama on the cover. What a great place to work.
Share this:Trends in Social Media in Health Care
May 7, 2010
Yesterday I had two content successes. My article Social Media in Health Care: Barriers and Future Trends was published in the Perspectives section of this online newsletter. In it I propose 3 trends to watch for:
- Managing a conversation;
- Engaging e-patients;
- Convergence with personal health records; and
- Social media for providers
I will be interested in your comments on this blog or via Twitter (@JohnSharp).
Yesterday I also spoke at the J. Boye Conference in Philadelphia on Social Media in Health Care: Humble Beginnings to Patient Engagement. This conference is more intimate and interactive than most with specific tracks for each day. I spent the first day in the Higher Education track and found many similarities with the struggles we in health care experience. The second day had an eHealth track that included Jane Sarasohn-Kahn who had just returned from a Senate Hearing on Mobile Health.
Check out my slides below.
The Quantified Self in Healthcare
May 3, 2010
In the New York Times Sunday Magazine, an article by a Wired editor, talks about the growing trend of the Quantified Self, or the data driven life. Why is this becoming a real trend? “Four things changed.
- electronic sensors got smaller and better.
- people started carrying powerful computing devices, typically disguised as mobile phones.
- social media made it seem normal to share everything.
- we began to get an inkling of the rise of a global superintelligence known as the cloud.”
While more people are creating catalogs of various aspects of their lives, some specific healthcare examples are cited including Medhelp.org “where more than 30,000 new personal tracking projects are started by users every month” and CureTogether.
Also, in FastCompany, an article title Our Bodies, Our Quantified Selves, they note that “there may actually be some meaningful upsides to this radical transparency.” Particularly the opportunity for medical research on this exponentially growing volume of data.
To me, this is the obvious next big thing in health care. The only question is how to channel the energy of this new trend into meaningful information for the individual and society.
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