Posts Tagged ‘Health 2.0’
Guest Blog Post on e-Patients Blog
September 30, 2009
I was privileged to be asked by ePatientDave to post an enhanced version of my blog post on the Journal of Participatory Medicine on the e-Patients blog yesterday. I stand by my claim that everyone in health care needs to understand the e-patient movement and participatory medicine to understand the future of medicine.
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Forget Medical Privacy?
September 29, 2009
On the blog for PatientsLikeMe is a brief comment about a provocative statement by Wired Magazine to “Forget Medical Privacy.” Wired published this as part of their “12 Shocking Ideas That Will Change the World.” PatientsLikeMe which is the only Health 2.0 site I know of that values openness and has an openness policy believing that it will contribute to health care instead of holding privacy so tightly that it inhibits the ability to use valuable clinical data. A video on the blog post addresses the question of openness directly: “Given my status, what is the best outcome I can achieve and how do I get there?”
From Wired: “And that lack of openness, Heywood argues, is making us sicker: With
data scarce, there’s no clear way for physicians to know what
treatments are working for other practitioners.” In fact, hospitals are allowed to use data from the Electronic Medical Record with the approval of their Institutional Review Board.
At the Medicine 2.0 Congress, a award winning presentation by PatientsLikeMe demonstrated how they can utilize data shared by patients to quickly address drug side effects and other commonly shared problems. A combination of using existing data, such as, from an EMR and patient shared data, such as, from social networking sites, can certainly accelerate medical research while not totally abandoning privacy.
Technorati: Health 2.0
Share this:Upcoming Conferences On Medicine 2.0 and Health 2.0
August 31, 2009
I have two presentations in the next two months at conferences full of great content.
- Medicine 2.0 Congress in Toronto, September 17 and 18 – will be presenting on “Hospital Adoption of Medicine 2.0 – a Culture Shift” Twitter hashtag: #med2
- Reshape 09 - Second Health 2.0 Conference: Healthcare Communication is Changing in Nijmegen, The Netherlands, October 12 & 13. Presenting as a keynote on Health 2.0 trends. Twitter account @Reshape09
Health 1.0, Health 2.0, Health 3.0
July 30, 2009
In Health 1.0, the ePatient would search the Internet the night before a doctors visit for a serious illness and print out hundreds of pages and insist that the physician address each page.
In Health 2.0, the ePatient goes to to social networking sites to research how others made treatment decisions and coped with their illness. They securely email their physicians for second opinions, and checks the ratings of physicians and hospitals online.
In the future Health 3.0, the ePatient obtains their genetic profiles, sets up semantic agents to monitor for new treatments for the conditions their are at risk for and develops micro-communities of others with similar risk profiles. Health messages to manage the risk profile are delivered to a mobile device which also monitors blood pressure, blood sugar and other vital signs.
Question – where is the physician in Health 3.0?
What is it Like to Receive Your Genetic Profile?
July 28, 2009
Now that online offerings for genetic testing is readily available, what is it like to order the test and then receive and open the results for the first time? Jen McCabe Gorman, the quintessential ePatient, shares her experience on YouTube as she opens her results from 23&Me. Here experience is filled with excitement, worry and questions – wondering who else in her family might have similar traits, what are the medical implications of mild tendencies, what are the implications for future medical treatment? This personal experience goes beyond anything you will find describing these online genetic testing.
Share this:Update on Physician Social Networking
May 22, 2009
Participated in the Within3.com advisory board this evening – a very dynamic meeting with lots of creating ideas from the board and the staff. Their business model is refreshing – no advertising, no anonymous identities, developing communities which enhance healthcare and the practice of medicine. They just launched the community for the alumni of Boston’s Childrens Hospital. Within3.com is a Cleveland startup (yes, Cleveland does have startups including many biotech firms). This is a company to watch.
Also, videos from the Health 2.0 conference in Boston have been posted.
Share this:Health 2.0 Updates
May 4, 2009
Two recent postings shining more light on Health 2.0. Specifically, a European post on Health 2.0 and Information Therapy, the joint topics for the Boston conference. He notes that both are an “enhance the patient care and the patient provider relationship.” He wonders about the business case for using something like Mayo Clinic’s Health Manager based on HealthVault. Currently, there is no indication that there are any such plans but some of the other examples, such as, LiveStrong and ChangeHealthcare, may have a business case for healthcare organizations.
Second is a video of Clay Shirky, author of Here Comes Everybody which I am currently reading. I also heard hims speak at HIMSS 2009. The video on Ask Manny Hernedez’s blog gives an update on the book. The complexities of networks and the tools which enable groups to form without hierarchies has interesting implications for healthcare. Healthcare, especially hospitals and nursing with their sometimes rigid structure inherited from the military and academia, is often the antithesis of social media. How will these tools change healthcare? Will healthcare hierarchies disappear? Probably not soon, but these structures will be challenged by social media in the short term.
The Digital Consumer: Roadmap to Web 2.0 in Healthcare Organizations
April 29, 2009
From a recent presentation in Baltimore.
The Digital Consumer: Web 2.0 Roadmap for Healthcare Organizations
View more presentations from John Sharp.
Health 2.0 aftermath – An Avalanche of Creative Activity
April 28, 2009
Several articles and blog posts after the Health 2.0 conference and Healthcamp immediately prior in Boston reflect the incubator of innovation which is this space.
- The public’s belief in scientific uncertainty and the importance of the social health Internet” describing a “health knowledge-dialectic” between providers and consumers
- Stanley Feld on “Healthcare Is A Team Sport” which is complimentary of Jen McCabe Gorman’s understanding of social networking and content and his belief “that repair of the healthcare system can be partially achieved with effective
disease specific social networks as an extension of physicians’ care.” - This Twitter Thing from Info.Matics about the experience of twittering at a conference as a confirmatory experience.
- Finally, the response of Google to ePatientDave’s experience with Google Health.
With the related activity on Twitter continuing, more thoughts on the role of Health 2.0 in health care reform will emerge.
Share this:Intermediation and Apomedication
April 7, 2009
Thanks to Gunther Eysenbach for his twitter post with some helpful links on this emerging terminology
- Ix (Information Therapy) = intermediation
- Health 2.0/Medicine 2.0 = apomediation / disintermediation
